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Pathological Demand Avoidance

Understanding PDA — a profile characterised by avoidance of everyday demands and extreme anxiety.

Source

This page draws on the Royal College of Psychiatrists report: The Psychiatric management of autism in adults (College Report CR228, pp. 30–31).

What is PDA?

Although not recognised in the international classification systems (ICD and DSM), this label — also called Extreme Demand Avoidance — has been adopted by some clinicians and families in the UK and mainland Europe.

PDA has been used mainly to describe children who present with a behaviour profile characterised by:

  • Avoidance of compliance with everyday demands, using a variety of social strategies (excuses, distraction, negotiation)
  • Anxiety when demands cannot be avoided
  • Attempts to control situations
  • Impulsivity and sudden, extreme changes of mood

There is debate as to whether this behavioural profile is a variant of autism, whether it might be seen in other conditions, or whether it is a condition in its own right (Green et al., 2018).

Image source: PDA Society – pdasociety.org.uk

Image source: PDA Society – pdasociety.org.uk

Understanding the PDA Profile

Newson (1989) noted PDA can be considered part of the spectrum because of the social interaction and communication impairments; the presence of repetitive behaviours, obsessive interests, and lability of mood. Some crucial differences were identified: the obsession to avoid everyday demands; a high level of social insight ('surface sociability'); and a need for control (Newson, 1996).

Individuals identifying with PDA, and their families, are likely to be under unusual levels of stress. A detailed assessment and formulation is needed, aiming to help manage the presenting behaviour and varied underlying factors such as severe anxiety and sensory sensitivities.

Image source: memyselfandpda.com

Image source: memyselfandpda.com

Helpful approaches

Strategies include: reducing demands where possible, offering choices, using indirect language, avoiding confrontation, and building trust gradually. Approaches that work for autism generally may need significant adaptation for PDA.

References

Green, J. et al. (2018). Pathological demand avoidance: Symptoms but not a syndrome. Lancet Child & Adolescent Health, 2(6), 455–464.

Newson, E. (1989). Pathological demand avoidance syndrome. Communication, 23(1), 3–8.

O'Nions, E. et al. (2013). Developing the 'Extreme Demand Avoidance Questionnaire' (EDA-Q). Journal of Child Psychology and Psychiatry, 55(4), 444–452.

Royal College of Psychiatrists. (2020). The psychiatric management of autism in adults (CR228).